DDW Unit Monthly Feedback - August

The DDW Unit will be hosting a monthly feedback forum to present and accept feedback on draft chapters of the DD Waiver Services Standards which are planned for reissue in January 2018.  Below is a list of chapters that will be reviewed.  These draft chapters have been posted on the ACT website.  Please go tohttp://www.actnewmexico.org/ddw-renewal.html to review these chapters.  There will be a limited amount of hard copies available at the meeting.  Please download the draft chapters to your mobile device or print copies, if possible.  The Feedback Forum will be held on Wednesday, August 16, 2017 at the Bank of the West, 5301 Central Ave, 17th floor conference room, Albuquerque, NM.  This meeting is intended to take place in person for most effective discussion but a Skype link is available for your convenience as well.



Meeting Date

Time am/pm sessions

Links to Draft Chapters for Review
(NOT based on final Chapter order)


9:30 a.m. - 12:00 p.m.

Human Rights & Settings Requirements
Person Centered Planning
Individual Service Plan


1:00 p.m. - 3:30 p.m.

HealthCare Coordination



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Toll-free number: 8667575788, access code: 3791533675

Toll number: 7606990922, access code: 3791533675

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Conference ID: 3791533675 (same as access code above)



Electronic Submission of comments is available through August 30, 2017. Please go to the Draft Postings (http://actnewmexico.org/ddw-renewal.html#Schedule ) and click on the survey link to submit your comments.



Please contact Gayla Delgado, the Assistant DDW Program Manager at 476-8915 with any questions.

State Fair Sensory Station

Dear Rio Grande Down Syndrome Network,


My name is Cesar Colunga, I am currently an employee of EXPO New Mexico.  This year The State Fair is designing an area called the "State Fair Sensory Station." We are aware that the State Fair can be an overly stimulating environment; we want to create an area that parents can take their children to an indoor private area who may need to deescalate.  The area is open for anybody because it is a public space, however, the target market is to accommodate individuals who special needs, such as Autism or Down Syndrome.  I have met with the New Mexico Autism Society and have gotten ideas and advice from them.  I was wondering if I could potentially meet with somebody from the Rio Grande Down Syndrome Network, or if you could get me in contact with somebody that would know the answers to the questions I might have, and to questions I haven't even thought to ask yet.  I am in charge of making this area a reality and the New Mexico State Fair is the first to include an area like this in their fair.  I am determined to make this area a success and with the advice and guidance from the Rio Grande Down Syndrome Network, I know that this area shall be a success. As of right now, I am drawing most my inspiration from the Sensory-Friendly Hours of Explora.


Hope to hear from you soon.


Cesar Colunga
State Fair Sensory Station Coordinator
New Mexico State Fair/EXPO New Mexico


HSD - Medicaid Information



The Human Services Department (HSD) recently released its draft plan to renew the state’s Medicaid waiver (aka Centennial Care 2.0). The plan includes some alarming changes to Medicaid that will harm patients:


·         Charging new monthly fees with premiums and co-pays for children, the working disabled, and other low-income adults whose income is above the poverty level, that will cause thousands of people to lose coverage;

·         Ending retroactive coverage protection that pays for the past medical bills that a person had in the three months before applying for Medicaid;

·         Checking income every quarter or six months, resulting in coverage loss for people with fluctuating incomes, such as seasonal and part-time workers;

·         Ending a “transitional Medicaid” program that will result in coverage loss for our lowest income families, penalizing them for entering a new job or accepting a raise; and

·         Reducing benefits for very low-income adults with dependent children and giving the HSD secretary broad authority to cut more benefits in the future.

HSD is holding hearings to get feedback on these changes. We need to pack these hearings! Please save the date of these hearing dates/times below and plan to attend at least one and provide comment. Please also share this with your networks, asking them to do the same.


HSD Public Hearings

June 14th – Albuquerque – 3:30-5pm – CNM Workforce Training Center (5600 Eagle Rock Ave. NE, Albuquerque, NM 87113)

June 19th - Silver City - 4:00 – 6:00 pm - WNMU – GRC Auditorium (1000 W. College Ave., Silver City, NM 88061)

June 21st – Farmington - 4:30 – 6:30 pm - Bonnie Dallas Senior Center (109 E. La Plata St., Farmington, NM 87401)

June 26th – Roswell - 4:30 – 6:30 pm - Roswell Public Library (301 N. Pennsylvania Ave., Roswell, NM 88201)


Tribal Consultation Hearing

June 23rd – Albuquerque - 9:00am – noon - Indian Pueblo Cultural Center (2401 12th Street NW, Albuquerque, NM 87104)


We will send more talking points later this week regarding HSD’s plan. Should you have questions in the meantime, do not hesitate to contact me.


Abuko D. Estrada

Staff Attorney

New Mexico Center on Law and Poverty



Corrales Soccer Club - "TOPSoccer" program

Corrales Soccer Club is going to be putting on a “Top Soccer” program for kids with disabilities. It’s a fall and spring program, just like all the other soccer programs in town.  

They have 2 weekly practice options – you can go to one or both, on Wednesday night and/or on Sunday afternoon. 

Registration link: http://www.corralessoccerclub.org/registration.php  If you register by July 14, it’s $80 for both fall and spring season.

They do have scholarship options available for families who need help with the registration fee.