Looking for Family Trainees for LEND and PPC Leadership Programs

Dear Parents,

My name is Phyllis Shingle and I am the Family Faculty for the NM Leadership Education in Neurodevelopmental & Related Disabilities (LEND) and Pediatric Pulmonary Center (PPC) Leadership Training programs.  I am working on finding 2-4 parents who would like to participate as Family Trainees in these two training programs for the Fall 2019 and Spring 2020 semesters. 


These programs focus on training the upcoming workforce about leadership, interdisciplinary teaming, public policy, and disability.  We have trainees from a variety of disciplines such as SLP, OT, PT, social work, nutrition, self-advocacy and family leadership.  The professional disciplines are graduate students or professionals in the field.


If you have the ability to come to seminars each Friday for the Fall and Spring semesters and want to network with future professionals, gain new skills, and model interdisciplinary teams that include parents, I would love to talk to you about participating in as a Family Trainee in one of these programs. There are stipends for each semester.


I've attached one document about the LEND program and one about the PPC program.  Please email me at pshingle@salud.unm.edu. We can set up a time to talk and answer any questions. 


NM LEND website: http://www.cdd.unm.edu/nmlend/


PPC website: https://mchb.hrsa.gov/training/projects.asp?program=15


Thank you!

Phyllis Shingle, LCSW CIRS

CDD Information Network & UNM CDD Mi Via Manager

NM LEND & PPC Family Faculty

Cell: 505-321-9384

Fax: 505-272-5883


Special Olympics - Young Athlete Program


Special Olympics Young Athlete Program

WHO: Children ages 4-7 with an Intellectual Disability and their siblings

WHAT: A Special Olympics program designed to help develop Motor Skills for young children with disabilities, and prepare them to participate in a Community Based Competition Program

WHEN: Every Sunday at 3:00pm Starting April 28th

 WHERE: Mariposa Basin Community Park

*please email Rebecca at Rebecca@sonm.org to register for the first practice.

Contact NM Governor

This message is from Ellen Pinnes and The Disability Coalition.


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The Legislature passed 310 bills in the 2019 session.  Sixty of them were sent up to Governor Michelle Lujan Grisham while the session was underway and have already been signed into law.  Now she has 20 days from the end of the session to act on the remaining bills passed by the Legislature.  Any bill that isn’t formally signed or vetoed by April 5 is considered vetoed by “pocket veto”.


We encourage you to contact Governor Lujan Grisham and urge her to sign bills that are important to you.  Information on how to contact the governor is given at the end of this message.


The bills awaiting the governor’s action include a number that are of interest to the disability community, including:

  • HB 322 (Rep. Liz Thomson) – Bars health insurance companies and the Medicaid program from imposing age limits or expense caps on covered services for persons with autism.  Such limits are prohibited by the federal Affordable Care Act but are still being imposed in both private insurance and the Medicaid program. 

  • HB 364 (Rep. Antonio “Moe” Maestas) – Prohibits jails and prisons from placing persons known to have serious mental disabilities, or who are exhibiting obvious signs of such disabilities, in solitary confinement (“restricted housing”), with some exceptions.  This prohibition would not apply during the first five days of detention.  The bill also forbids use of solitary confinement for juveniles and pregnant women. 

  • HB 436 (Rep. Liz Thomson) – Amends New Mexico law to include many of the provisions of the federal Affordable Care Act, such as prohibiting denial of coverage based on pre-existing conditions, barring higher premiums based on a person’s disability, requiring coverage of essential health benefits, eliminating co-pays for preventive services, etc. 


For a more complete list of disability-related bills passed by the 2019 Legislature, see Jim Jackson’s Post-Session Report.  If you don’t have a copy of the report, it’s available on the Disability Rights New Mexico website at drnm.org.  Click on “Legislative Reports” on the left side of the homepage.  (For other legislation, or for additional information on the bills in Jim’s report, go to the Legislature’s website at nmlegis.gov.)


In addition to substantive bills, the governor must act on three budget bills – the big state General Appropriations Act (House Bill 2) that funds all state agencies for the next fiscal year, and the two “junior” bills (HB 548 and SB 536) through which individual senators and representatives were able to allocate sums of money to their preferred programs.  Information about specific appropriations in the budget bills is also included in Jim’s Post-Session Report. 


For appropriations bills like these, the governor can choose to make “line-item vetoes” by crossing out particular language in the bill while signing the rest of it into law.  If you support particular provisions in HB 2, HB 548 and SB 536, you should contact Governor Lujan Grisham and ask her to keep those provisions in the bill.


You can contact the governor—

  • By phone:  Call her office at 505-476-2200 and leave a message.

  • By email:  Go to her website, www.governor.state.nm.us.  Click on “Contact” in the upper right corner of the page, then on “Contact the governor” in the drop-down menu.  Fill out the form that comes up on the screen and click “Send Email” to complete the process.

  • By mail to:

          Gov. Michelle Lujan Grisham

          State Capitol – Room 400

          490 Old Santa Fe Trail

          Santa Fe, New Mexico 87501


Remember, the governor has until April 5 to sign or veto bills, but she can act on them at any time during that period.  So if these measures are important to you, don’t delay!


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The Disability Coalition is administered by Disability Rights New Mexico and is funded in part by

the New Mexico Developmental Disabilities Planning Council through Federal Program funding. 

Additional funding is provided by The Arc of New Mexico,

the Independent Living Resource Center, New Vistas and DRNM.

If you prefer not to receive emails from The Disability Coalition, 
please send a message to EPinnes@msn.com with “unsubscribe” in the subject line.

PRO Scholarships to Family Leadership Conference

We are excited to announce that we are opening a 2nd round of scholarships for the Family Leadership Conference! The deadline is March 15th, 2019.




Scholarship | Parents Reaching Out

15th Annual Family Leadership Conference Scholarship Information Thank you for your interest in attending the 15th Annual Family Leadership Conference! Scholarships are reserved for parents or caregivers of a child with a disability, special needs or at-risk for developmental delay and youth with di...




Please go on-line to get a form for a scholarship.  


Main Office
1920 Columbia Dr SE
Albuquerque, NM 87106
Phone:(505) 247-0192 or 1800-524-5176

Las Cruces Office
133 Wyatt Drive # 11
Las Cruces, NM 88005

DD Waiver Update

This message is from Ellen Pinnes and The Disability Coalition. 


* * * * * * *


There are 6,500 people on the waiting list for the Developmental Disabilities Waiver (DDW) and wait times have grown to 12 years or more.  With state revenues this year the highest they’ve ever been, it’s time for New Mexico to move people onto the waiver and cut those ridiculously long waits.


In a report issued last summer, the Legislative Finance Committee called for a five-year plan to reduce the DDW waiting list. HB 68, sponsored by Rep. Liz Thomson, responds to that recommendation and directs the Department of Health to move at least 600 people off the waiting list and into waiver services each year for five years.  A total of 3,000 people would be added to the waiver over those five years.  The bill includes a $25 million appropriation to implement this multi-year plan.  The money would be matched with federal Medicaid dollars, for a total of more than $90 million available to add individuals to the waiver (both the traditional DD waiver and Mi Via).  This money would become part of the “base budget” for the department, which means this higher level of funding would be kept up in future years.


HB 68 passed its first committee, House Health & Human Services, unanimously.  But the HB 68 plan won’t be adopted unless the funding is added to the state budget bill, HB 2.   The House Appropriations and Finance Committee (HAFC) is working now to put that budget bill together.  We urge you to contact members of HAFC with a simple message:  ask them to include $25 million in HB 2 to the Department of Health for the HB 68 five-year plan to reduce the DD waiver waiting list. 


The most important people to contact are the Chair and Vice-Chair of the Committee, and the members of the subcommittee that will recommend funding levels for the Department of Health:


            Rep. Patricia Lundstrom, HAFC Chair, 986-4316, patricia.lundstrom@nmlegis.gov

            Rep. Bobby Gonzales, HAFC Vice Chair, 986-4319, roberto.gonzales@nmlegis.gov


            Sub-Committee members:

            Rep. Rudy Martinez, Sub-Committee Chair, 986-4233, rodolpho.martinez@nmlegis.gov

            Rep. Nathan Small, Sub-Committee Vice Chair, 986-4438, nathan.small@nmlegis.gov

            Rep. Anthony Allison, 986-4254, anthony.allison@nmlegis.gov

            Rep. Cathrynn Brown, 986-4242, c.brown.nm55@gmail.com

            Rep. Randal Crowder, 986-4250, randal.crowder@nmlegis.gov

            Rep. Jack Chatfield, 986-4467, jackc@plateautel.net

            Rep. Melanie Stansbury, 986-4336, malanie.stansbury@nmlegis.gov

            Rep. Candie Sweetser, 986-4255, candie.sweetser@nmlegis.gov

            Rep. Christine Trujillo, 986-4249, christine.trujillo@nmlegis.gov


            Other members of the HAFC, who will also vote on the budget bill:

            Rep. Phelps Anderson, 986-4450, phelps.anderson@nmlegis.gov

            Rep. Gail Armstrong, 986-4242, gail@gailfornewmexico.com

            Rep. Paul Bandy, 986-4250, paul@paulbandy.org

            Rep. Harry Garcia, 986-4233, hgarciad69@gmail.com

            Rep. Javier Martinez, 986-4236, javier.martinez@nmlegis.gov

            Rep. Tomás Salazar,986-4236, tomas.salazar@nmlegis.gov

            Rep. Joseph Sanchez, 986-4226, joseph.sanchez@nmlegis.gov

Thanks for making the voice of the disability community heard!


* * * * * * *


The Disability Coalition is administered by Disability Rights New Mexico and is funded in part by

the New Mexico Developmental Disabilities Planning Council through Federal Program funding. 

Additional funding is provided by The Arc of New Mexico,

the Independent Living Resource Center, New Vistas and DRNM.


If you prefer not to receive emails from The Disability Coalition,

please send a message to EPinnes@msn.com with “unsubscribe” in the subject line.